I got a call. A life changing call last Thursday night that my son had tested positive for Celiac Disease. This is an auto-immune disorder that requires a strict, lifelong gluten free diet. My super picky eater boy will never be able to eat a lot of foods that most of us take for granted.
Unsure of what to do, on Friday morning I called our Doctor's office and said I had got some dramatic test results and I needed more information and asked if his doctor or my doctor could call back.
It's Wednesday of the following week and I am still waiting. I have called twice a day since Monday and I have not made my second phonecall today, but I probably will in about an hour.
The back of my head is pounding I am so angry. I stopped the gluten on Friday and made some pretty dramatic changes to my kitchen. I got rid of all the gluten foods that he eats and plan on phasing out the rest of the stuff with gluten that we eat and replace it with GF alternatives.
But I expected to have a conversation with a doctor about whether or not all this was a good idea.
What the fuck? Why haven't they called me back. According to the Childrens Hospital Boston website, 1 in 80 kids have this disease. It can't be the first time a blood test has come back positive.
What the hell is going on.
Off to make my tenth phone call. OK, it's only my sixth. But still.